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  1. I'm only using cytruline as an addition to the Amlodypine. It works but it's definitely less potent and Amlodipine is working for about 24 hours vs just few hours. Now I switched to taking Amlodypine just before sleeping. This way I'm not walking as if I was drunk upon waking up. It seems to be working better for me and I think I can sleep less this way (ustali still 9+ hours). It seems to me that it's mostly an issue with circulation. My issues are rather stable and mostly predictable. My issues with acid reflux / breathing are equally bad no matter what I eat - it's more about volume and time it takes to digest (the only exception is a cake with yeast). I feel like my stomach is using too much oxygen and my brain isn't getting it's share. Oh. The interesting fact is the only time I felt I could just rest and breathe properly was when I had a fever. I only started taking them this year. My issues started at minimum 15 years ago but I can recall some symptoms even from 20 or 25 years ago. Now it got just much worse. Intrestingly after medication fatigue isn't that bad. Most annoing it the brainfog and constant anxiety. Another factor is that I have to do things my way. I'm often annoyed is someone asks me to do something but they block me and I have to stand longer than needed. There is a weird mixture of feeling guilty of having a short temper but then I realize that there is an underlying reason why I'm getting annoyed. If I'm doing stuff in my own I can adapt to my body's needs. When I'm alone I'm just doing and things flow more easily. However external expectations are hard to adapt. Sometimes I need to rest for 5 or 15 minutes and focus on breathing otherwise I will feel really bar. Family often expect to do things now or to know when something is going to be done. What are your struggling with the most?
  2. Oh. I see that my last post was one day shy of one year I still don't know all that much. I started using beetroot powder, than switched to arginine and cytruline. I also drank some diluted minoxidil (hair spray) to verify my hypothesis - It helped more than anything else. Now I'm using Amlodypine. I have much more energy. It also helped with my acid reflux. It seems that for some reason there is excessive vasoconstriction that makes breathing harder. More effort in breathing causes acid from my stomach up and this cause even more constriction in airways. This causes the hypoventilation. I have much more energy but I feel like im being mildly suffocated all the time. My body is anxious and hypersensitive to external stimuli. I'm unable to sit or stand or lay for too long - I have to switch between movement and resting. I have to move a lot to keep blood circulation going but I also need a lot of rest. It feels like there is no solution because my body automation is messed up and I need to adjust everything manually.
  3. It started right before diagnosis and using stimulants. ADHD medication helps but it's rather just masking symptoms. It's still useful because it makes resting much easier. Good question. I can somewhat relate to having tesion and definitely often struggle to breathe fully. However NEVER when I exercise. When I'm cycling it's almost the only time I can breathe normally - I do not feel that the air flow is constricted. I'm often oxygen thirsty while laying on the bed. I have to breathe faster because I can't get enough air in. This year there was a time when my breathing became very shallow. It felt like it takes much more effort. I was unable to breathe deeper even when tried to do it consciously. Definitely felt more like something was pressing on my chest. I didn't feel that my throat is an issue. Interestingly I did one day test with peak flow meter and got result around 7 liters. I'm allergic to grass but I did desensitization for 5 years. This year I experienced those issues for one month. Otherwise not. I suspect having hypovolemia. That seems to match best with my symptoms. Yesterday I did a 100 km trip on my folding ebike and had crazy vertigo when tried to get up.
  4. Update! It got so bad that I was barely able to leave my home (lack of elevator was the biggest issue). Than I got an e-bike so I wold be able to get around without excessive effort. I rode ten kilometers on "turbo" mode.. and something happened. After just a few days of riding I do not have problems with fatigue (I was tired but in a different way). I guess in my case there is an issue with oxygen delivery that caused CFS symptoms. Moderate phisycal activity depletes oxygen and makes me feel bad. I always had to do some vigorous execises at least once a week otherwise I felt lethargic. Lately I was taking Metylophenidate which probably masked lack of exercise. I probably have some kind of hypoxia but I don't know yet how to identyfy the root cause.
  5. @Javfly33 I agree with @soos_mite_ah I would suspect that to you might be on the asexual spectrum. Recently I had a realization about that. Conventionally asexuality ment that your are blind to sexual attraction / have no libido. But other definition I heard is that you might be sexually aroused seeing attractive person. However you do not imagine yourself doing anything with them. I'm demisexual / aegosexual. In my case I'm horny but the thought of ME doing something sexual with an attractive female feels rather disgusting Erotic content will make me aroused but the point is that I'm not involved in the situation. I might have some sexual fantasies but they are more symbolic - like imaging myself and partner as silhouettes. Demisexual part means that I'm more interested in sensual part of sexuality. I would also need deep emotional connection for anything to happen. I might find someone hot and get very aroused but it's not enough for me to have a desire to do anything physically.
  6. I do not take any vitamins. I more than willing to take suggestions what should I use and about dosage. I just compiled ME/CFS recomendations but I may be still missing stuff in my list. My blood pressure was always rather higher than lower so lowering it would be rather beneficial. I do not feel sluggish, sometimes even opposite. I may even forget that running up the stairs isn't a good idea Also regarding Magnesium - it's usually (always?) an ingredient of electrolytes for dehydration. I'm not perfect at nonejaculating. I'm good enough at controlling and do not loose much semen. I'm 90% there but there is still some improvement to be made. I'm also using antidepressants so ejaculation isn't even easy anymore. Definitely ejaculation depleted my energy and caused brain fog. I can't exercise. Keep in mind that I may be in a prolonged PEM because I overextended myself I did not rest properly. Any exercise would definitely make me crash. I'm only able to cycle 4 km one way, than sit and relax for 45 minutes and go back home. I do it every other day. When I walk op the stairs I have to lie down on my bed immediately to lower my heart rate.
  7. @Michael569 Thank you There is no point in being too quick. I'm 179 cm, probably 68 kg or slightly less. I used a scale to check my post composition - probably not very reliable. I suspect that I have around 15% now, I used to be closer to 12% when doing keto. I don't remember my exact muscle mass but I guess it was 36 or 37 kg. I have thin bones, long arms and legs (but shorter neck), narrow hands and head on a smaller side. Interestingly I was suuuper tired/sleepy after eating oatmeals but not anymore. My blood pressure is on the higher side. I guess something like 125-130/70-75 - I can make some more mesurements. As far I know blood pressure is misleading because measurement is made in rush. Proper mesurement requires 30 minutes of rest and dark room. At the moment my room feeks like sauna - probably there is 30 °C - so this will also make mesurements less useful. Idea if calculating points makes sense but sadly will be impractical in my case. I'm living on the fourth floor. I have to be very careful not to rise my heart rate. Today just going 600 meters in total (to ship parcels) and walking up the stairs (with a short rest) forced me to sleep for two hours. In my experience it might be easier to just feel my body. One thing can be too much at one time but it will be totally do do twice as much two hours later. At this point I'm trying to save as much energy as possible. Two-three years ago I used to be on keto. I eat some meat, cheese and usually 3 eggs a day. I rather try to avoid butter. I feel better on a high fat diet. I'm trying to switch from saturated fats. For this reason I ditched peanuts for macadamia. I also limited my cheesecintake I'm dying after eating things like regular ice cream or cakes containing wheat and sugar. This things make me feel terrible and can cause brain fog. I avoid sugar as much as possible. Fruits like banana or dates are totally fine. If you have any questions let me know. I'm glad to be used as your reaserch mice
  8. I focused on my ADHD and Autism diagnosis and developing my (mostly) online business - I was practically unemployed most of my adult life. I think that a big factor is that English is not my native language. So when I had a brain fog (which probably happened often) I did not have any desire to post. It's like having English somewhere deeper in my brain and it's harder to reach when memory doesn't works properly. It was entirely my idea. I stumbled many times on a CFS term while reading about autism in reddit. Finally checked what it really is and everything made sense. The tipping point was my PEM after quite short and gentle cycling. I have red CFS diagnosis criteria and had enough symptons. My GP did not question my self diagnosis (as it is something common and a lot of people can function with) but also did not investigate it further. I only had long vaccination It caused my worst PEM ever. I'm 99,98% sure that worsening was caused by forcing myself to do stuff when I was very tired. I used nootropics that enabled me to push even harder. It wasn't just me doing to much because of my ambition. It was rather listing stuff and that needing to tidy up in the morning. Also constant meltdowns (being pushed or nagged by others) and emotional dysregulation added up. TSH 1.92, FT4 0,86, B12 278.0 I attached photos - I hope it's readable. There might be still something to add to my stack. Those are the most common supplements. Spirulina should be helpful to replanish blood, creatine for energy and better focus, EAA to maintain muscle mass. I ordered some small stainless dip containers so I will be able to prepare for few days in advance. I would definitely skip supplementing when most needed.
  9. Oh. I didn't want to make my post too long. I'm currently supplementing: - CoQ10 (large doses of powdered form and smaller capsules with fat) - life saver - NADH - l-carnitine - spiruline - ribose - magnesium malate - potasium malate - fish oil - EEAs - glicine - curcumin
  10. I did a bloodwork - everything perfectly fine. In my childhood I got really sick. I had a solid fever - almost 42 Celsius degrees or 107 F. Than for a week I had 40 Celsius degrees fever. I remember that after that I felt weaker. That could be a reason but I don't really know. I found a doctor in my city that has a good track record for CFS. In a worst case scenario DIY euthanasia is an affordable option
  11. Probably will not solve your core issue but it may at least help with your symptoms https://m.youtube.com/watch?v=FrvVW6Tg5xQ&feature=youtu.be
  12. Sorry for a long post. I promise that I made it as consise as I could! I always wondered why I had so strong reaction to exercising. I used to think that I'm more sensitive to exercise in a positive way - I was often super tired after a physical activity I didn't do for a while. For example if I didn't ride a bike for few months and then did a 100 km trip. Next day I had a 'hangover' that lasted for a week. I often asked friends if they had similar experience but nobody did. I had those symptoms for at least 15 years. This year I got a double diagnosis of Autism + ADHD. I'm 35 years old now. Also finally after years of of being unemployed I stared making reasonable money selling stuff online. This also caused huge chaos in my life because I did not have enough place to store and organize my items. Around December/January I started feeling super tired. At worst I spent almost whole days laying in a bed and trying to sleep. I started taking Metylophendidate. It helped a lot until it did not. Than after increasing a dose it helped again but benefits seemed to wane over time. Now it became really bad that I am able to do maybe 20 or 30% of physical activity that my parents (they are in they mid 60) are able to do. Riding 20 km on a bike made me feel like I'm dying for a week. At first I thought it was just an autistic burnout, but it I seems to be a textbook PEM: - becoming tired 24h after physical activity, that lasts around a week - heavy brain fog especially in a first two says - memory problems - cold intolerance (it can cause PEM symptoms even worse that exercise alone) - increase in a resting heart beat from 50-55 to 70 bpm - I often had stuffy nose - CRAZY sound sensitivity! - weak hand grip - stuff is falling out of my hands - loss if physical coordination - bouncing into things - lowered torelance to physical activity - emotional dysregulation - shallow breathing (however now I have it all the time) - physically tired but unable to fall asleep because my brain is so wired I also drink a lot and then pee - which seems to be common in CFS. Also using Coq10 immediately helped my with my supposed PEM symptoms. I'm still very tired but at least stopped getting crazy brain fog. My GP said that there is enough going on and I don't need for another diagnosis. My bloodwork is almost perfect. There is no cure for CFS so there is nothing to do about it. She said that I might consult it with my psychiatrist because she can't help me. My psychiatrist thinks that I have a psychosis / schizophrenia However it seems that she knows almost nothing about CFS. She also said that I will no longer prescribe Metylophendidate. She thinks that I'm making things up and reading too much. I don't know what to do. I have another visit booked - another, better psychiatrist that I'm paying out of pocket. I do not have time to waste on a likely bullc#@p diagnosis. I just wish to be 50% physically functional and be able to work.
  13. @Something Funny Manufacturing is hard. I tested it myself. It depends what kind of product you want to create. If you start from scratch and create unique product, your manufacturing process is going to be very ineffective. I will assume here that you are doing it yourself. It means that your pay per hour is going to be super low. Another problem is selling your product. You need to spend a lot of time advertising to even make people aware off your product. Than you need to convince them that it's worth paying premium. Because of problems mentioned above I switched to reselling. Product is already made and well known. There is zero risk that I will not be able to sell it. There is also no need for advertisement. Having great product is secondary, first you need to be able to sell it.
  14. I listened to a couple of videos. It's quite interesting. However I'm doing exactly the opposite thing. I can't dedicate a whole room for my stuff at the moment. I keep most (in terms of value) of my stuff in just two suitcases. He claims that you should sell 10 items a day. Two items a day would be perfect for me. I tend to have a lower return form investment but I avoid buying stuff that will earn me less than $15-20. I like to buy stuff that costs $80 and can be sold for $120. It also takes as much space as a boxed mobile phone. I would like to transition to another category of product in order to make my stock smaller. Selling 5 expensive items a week would be perfect.
  15. SHORT STORY: I don't remember exactly. About a year ago I found some cheap used item. I didn't need so I bought it to sell it with profit. Once year later I'm getting reasonable income. My room is messy (not only).., bicycle parts are laying everywhere. I struggle to open my wardrobe because of boxes. I also have video LED lamps under my desk. HOW I WORK: Sometimes I fix stuff or make it look nicer. Sometimes I buy a set of items and sell them separately. Sometimes I just buy cheap, make a good description and great photos same make a good profit. PROBLEMS: My inventory is growing. At some point I will need to scale up because it doesn't make much sense to have more than five or ten identical items. If I'm syndrome selling cheap stuff because I got them as a set with one or two more expensive items. It's time consuming. Preparing two or three auctions a day would be reasonable. At some point I will need to scale up and find more expensive items to buy because my time and energy is limited. QUESTIONS: Do you know any good resources for a speculative reselling? What are good items for reselling? Bicycle parts are good because for an ordinary person it's hard to estimate a value. They are also quite small and easy to store.