Is this ME/CFS?

[Vynce]

Does anyone else experience/experienced Myalgic Encephalomyelitis / Chronic Fatigue Syndrom (or Long Covid, which is very similar)? 

Since about a year I'm researching why my fatigue won't go away. No matter how long I relax and sleep physical fatigue prevails. And since I'm not effected by junk food, drugs, sleep deprivation, brain cancer, depression, burnout ect., I'm really suspecting my nervous system caught something very similar to me/cfs somehow. I did all the typical tests for blood, MRT scans and basic check-ups to exclude anything more obvious. Nothing seems suspicious in that part. However ->

The cardinal symptom for ME/CFS is PEM (Post Exertional Malaise), which means that fatigue symptoms get WAY worse after physical exercise or even mental stress. So that some 20 minutes of moderate exercise can send one into weeks of fever like sickness -> Which I do experience as well. 

On some days it got so bad that I couldn't walk for 10 minutes before having to stay in bed for 80% of the day. Now it got better since some time, without any understanding why. Its not gone though.

Still, anything like normal work, exercise, dating, breathwork, psychedelics or just taking a good long walk is basically impossible for me now. For some people this condition can get fatally bad, which I'm luckily far away from. 

So have you had chronic fatigue like this somewhen? Or some of your relatives? What insights can one have into this? 

So far school medicine does not have any curative medication or therapy for ME/CFS and still only just suggests to pace yourself so PEM does not happen. 

I will suggest to my doctor to do a water fast again to see if autophagy can help with them corrupted cells in my body.
Still researching though.. 

Edited Sunday at 10:37 PM by Vynce

[Norbert Somogyi]

I'm sorry to read what you are going through, and I hope you find the source to heal!

However I don't think you are going to get an accurate diagnosis here. Regardless, there are a few potential causes that come to mind. Thyroid issues, anemia, certain nutritional deficiencies (vitamin D, Bs, minerals like copper&zinc, magnesium etc.). A comprehensive bloodwork is needed, especially if they haven't look at corresponding markers.

I was looking through the web and found a comprehensive website with a shitton of resourceful information, that you may find helpful. https://cfsremission.com/model-of-cfs/

One of the things people report there is finding relief by including vitamin D in their regime, levels above 50ng providing the biggest improvements. https://cfsremission.com/treatment/symptom-mitigation/core-vitamin-d3/

The main component or culprit there appears to be gut bacteria, that is altered in an unhealthy way.

I'm not well-versed in water fasting, but I'm not sure the body can fully heal itself that way when key building components are missing, toxins are overly present, or the stores are low.

Heavy Metal Toxicity is also a potential culprit, lots of information to be found even on this site. Developing a personal protocol with a professional, especially when it comes artificial chelators like ALA, DMSO etc. Alternatively there exist more natural approaches. They involve for example increasing methallothionein production within the body (zinc, copper, selenium and cofactors - See the works of Jason Hommel here), iodine, glutathione etc.

[Elliott]

Stress also does it

[Vynce]

10 hours ago, Norbert Somogyi said:

I'm sorry to read what you are going through, and I hope you find the source to heal!

However I don't think you are going to get an accurate diagnosis here. Regardless, there are a few potential causes that come to mind. Thyroid issues, anemia, certain nutritional deficiencies (vitamin D, Bs, minerals like copper&zinc, magnesium etc.). A comprehensive bloodwork is needed, especially if they haven't look at corresponding markers.

I was looking through the web and found a comprehensive website with a shitton of resourceful information, that you may find helpful. https://cfsremission.com/model-of-cfs/

One of the things people report there is finding relief by including vitamin D in their regime, levels above 50ng providing the biggest improvements. https://cfsremission.com/treatment/symptom-mitigation/core-vitamin-d3/

The main component or culprit there appears to be gut bacteria, that is altered in an unhealthy way.

I'm not well-versed in water fasting, but I'm not sure the body can fully heal itself that way when key building components are missing, toxins are overly present, or the stores are low.

Heavy Metal Toxicity is also a potential culprit, lots of information to be found even on this site. Developing a personal protocol with a professional, especially when it comes artificial chelators like ALA, DMSO etc. Alternatively there exist more natural approaches. They involve for example increasing methallothionein production within the body (zinc, copper, selenium and cofactors - See the works of Jason Hommel here), iodine, glutathione etc.

Appreciate it! I will look into everything of that the next days.

Its interesting you mention Vitamin D, since this was the only blood marker that was a bit low. And since I spent more time outside, I did got better. Heavy metal chelation was also something I thought about. 

I get back here, when I know more.