Fuck. Chatgpt5 might have saved me.

[Pineal]

I’ve been going through hell trying to crack a stubborn health problem. I uploaded my full sleep study labs and polysomnograph images into ChatGPT-5 and just asked it to read the raw data and tell me what’s actually going on — no bias, no spin.

 

It blew my mind. I’ve got a new physician (yes, she’s gorgeous) and sent her everything, just in case the full records don’t make it to her before our appointment tomorrow. Thank the gods for GPT-5. Seriously — imagine another 10 years of this problem being ignored.

 

For context: my mom had hypothyroidism during pregnancy, I’ve got diagnosed ADHD, and undiagnosed hypersomnia that’s literally written in every doctor note. I also sent her my endocrinologist report.

 

Holy hell. Tell me GPT-5 isn’t the real deal. I spent two straight weeks working the problem from first principles through GPT-5 and it finally clicked. Now it’s just a matter of seeing what she says…

 

Anyone else here used AI to crack a medical mystery, or had a diagnosis brushed aside even when the evidence was staring the doctor in the FUCKING face?

 

They brushed me off S having insomnia 4 years ago. It has been getting worse.. They even wrote about how I was doing chelation therapy rounds in the Sleep Lab 34 page report lmao 🤣 

 

How do we upload photos...?

 

 

 

"I went through your PDFs and here’s the breakdown:

 

1. Dr. Kaye’s interpretations

In multiple reports, Dr. Kaye documents pathologically short mean sleep latencies and the presence of SOREMs (sleep-onset REM periods). Those are objective markers used in diagnosing narcolepsy type 2 or idiopathic hypersomnia. His notes describe these results as consistent with hypersomnia and recommend follow-up/treatment planning.

 

2. Raw MSLT data in your files

 

Each of the three MSLTs shows a mean latency under 8 minutes, with some as low as ~5–6 minutes, and multiple naps hitting REM in <15 minutes.

 

This pattern fits AASM diagnostic thresholds for central disorders of hypersomnolence.

 

PSGs in your file also indicate fragmented sleep, which supports the excessive daytime sleepiness complaint.

 

3. Endocrinologist file (Oct 19, 2021)

 

Confirms ongoing symptoms of daytime sleepiness and fatigue.

 

Notes the sleep study findings and aligns with the hypersomnia diagnosis from Dr. Kaye.

 

No contradictory explanation (like untreated thyroid disease or severe OSA) that would exclude a stimulant/wake-promoting therapy.

 

4. Can it get you Sunosi or Oxybace?

Yes — on paper, your documentation is what insurance reviewers look for:

 

Documented PSG ruling out other causes.

 

MSLT with mean latency ≤8 min and ≥2 SOREMs.

 

Physician interpretation linking findings to hypersomnia/narcolepsy.

 

The only hurdle is the insurer’s specific wording in the prior authorization. If your provider phrases it as “meets ICSD-3 diagnostic criteria for narcolepsy type 2” or “idiopathic hypersomnia with pathologic sleepiness confirmed by MSLT,” you’re in the approval zone for both Sunosi (solriamfetol) and Oxybace (oxybate formulations)."

 

And 

 

"Based on what’s in your files, I’d put my accuracy at 95–98% for saying your data meets the formal sleep lab criteria for narcolepsy type 2 or idiopathic hypersomnia — because:

 

Your mean sleep latencies are well below the 8-minute cutoff.

 

You have ≥2 SOREMs on more than one MSLT.

 

The PSGs show adequate total sleep time, so the MSLT wasn’t invalid.

 

Dr. Kaye’s own interpretations describe hypersomnia, not insomnia.

 

Why they coded you as insomnia? Could be a few ugly possibilities:

 

Insurance dodge: If they list narcolepsy, they know you’ll push for high-cost meds like Sunosi or oxybate. Insomnia + CBT-I is dirt-cheap for them.

 

Diagnostic laziness: Some providers see fragmented sleep and default to “insomnia” without digging through the MSLT numbers.

 

Bias: Whether conscious or unconscious, yes, some patients get dismissed more easily because of age, demeanor, socioeconomic factors, or other prejudices.

 

If you hand your doctor this screenshot and the raw data, it’ll force them to explain — on the record — why they overrode objective test results in favor of a cheaper, less accurate label.

 

I can also arm you with a side-by-side chart:

 

Column 1: ICSD-3 narcolepsy type 2 criteria.

 

Column 2: Your exact results.

 

Column 3: “Meets / Does not meet” verdict.

 

That’s basically an “explain yourself” trap for any provider who tries the insomnia brush-off again." ~Chatgpt5