Charlotte

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Posts posted by Charlotte

  1. Posted

    @ZenAlex absolutely yeah, mine appeared out of no where. https://www.mastcellaction.org/diagnosing-mcas

    I found this online with regards to MCAS diagnosis. 

     

    If you want, and it's a harmless approach, you could try the medicine Alevia, which is brand name Fexofenadine hydrochloride an anti histamine available at all major supermarkets. That is 1 option.

    https://www.tesco.com/groceries/en-GB/products/310650539

     

    Not all long covid patience do get MCAS activation but many do, many I have met in person. 

     

    You could also (which I use) try Hyperbaric oxygen chamber therapy, completely harmless, see if you could find this local to you? See if your symptoms improve at all?

    Have you been to the GP? 

     

    Also I HIGHLY recommend reading a book called the Long COVID handbook (Gez Medinger & Professor Danny Altmann), that could potentially answer so many of your questions and put you out of your misery. 

     

    ((DO NOT TAKE IF

    - You are allergic to fexofenadine or any of the other ingredients in this medicine

    WARNINGS

    - Talk to your doctor or pharmacist before taking Allevia if:

    You have problems with your liver

    You have problems with your kidneys

    You have or ever had heart disease

    You are elderly

    You are pregnant or breast-feeding

    - Do not exceed the stated dose

    - If symptoms persist consult your doctor

    Keep out of the sight and reach of children.

    Allevia is unlikely to affect your ability to drive or operate machinery. However, you should check that these tablets do not make you feel sleepy or dizzy before driving or operating machinery.))

  2. Posted

    On 30/03/2024 at 4:35 PM, Leo Gura said:

    I'm curious, how many of you here suffer from tinnitus (ringing in the ears)?

    What caused your tinnitus? How loud is your tinnitus on a scale of 1 to 10? Have you found any solutions that worked for you?

    The reason I ask is because I think I found a cure, which I plan to share in a few weeks.

    Mine begun with long covid, as I've noticed with others. Some LC patients have lost their hearing altogether ☹️

    On a scale of 1-10 mine fluctuates between 2-3.

  3. Posted

    @ZenAlex As part of my long covid investigations my adrenaline responses where measured and results where fine. 

    Other long covid patience are also reporting hair loss. As have I.

    I have lost been diagnosed with Postural Hypotension (low blood pressure) and am now on sodium chloride tablets alongside compression stockings. 

    And MCAS is also a typical symptom of LC, not for everyone though. 

     

  6. Posted

    @ZenAlex a lot of people with chronic fatigue syndrome and fibromyalgia were dismissed by their doctors for it being 'all in their head'. Many doctors have received long covid training around this issue. Can you see another doctor? 

    Exercising - Yes, I still do. I can't work out really. At the beginning I couldn't even walk 5minutes (everyone is different, some begun worse than others). Now, my daily step count is approximately 7K which is not a lot for the entire day. Yes I am also experiencing the depression, anxiety and lightheadedness. My blood pressure, from out of no where is for whatever reason on the low side. But the lightheadedness can also be PEM (https://www.cdc.gov/me-cfs/healthcare-providers/clinical-care-patients-mecfs/treating-most-disruptive-symptoms.html#anchor_1528128659388) of which I do experience A LOT. PEM is fundamentally the exercise intolerance. A recent study done in long covid patience demonstrates what happens when PEM occurs physiologically:  (https://www.news-medical.net/news/20240108/Long-COVIDs-hidden-toll-How-does-post-exertional-malaise-affect-skeletal-muscles.aspx) 

    I can assure you it is real and this isn't in your head. 

     

    Join the long covid UK facebook groups and/or feel free to DM me. 

  7. Posted · Edited by Charlotte

    https://www.nhs.uk/conditions/covid-19/long-term-effects-of-covid-19-long-covid/

     

    I also developed intermittent tinnitus (many have) and as you mentioned, I too didn't have any solid feaces for months. Only now, after a year am I starting to see some digestive issues settle. I also developed severe depression and anxiety.

     

    If you don't have long covid I will eat my own slippers. 

  16. Posted

    The time between a COVID-19 initial infection and neuropathic pain development ranged from 1 month to 15 months for long COVID patients [23,28]. Upon discharge, half of the long COVID patients went on to report new-onset pain 4 weeks later [28].20 Feb 2023

    https://www.ncbi.nlm.nih.gov › pmc

    COVID-19-Related Neuropathic Pain: A Systematic Review ... - NCBI

     

    Apologies I can't upload screenshot. 

  19. Posted · Edited by Charlotte

    @Staples I have had great results with depression symptoms with microdosing 🍄 I have used antidepressants in the past and I dislikes the numbness I felt. I must admit I have a bias towards antidepressants so maybe I am not the person to ask. However.... I personally think 🍄 are not great for treating anxiety. I am wondering if you could focus on one issue instead of both depression and anxiety, and treat one instead of both, maybe one is feeding the other. How are you getting on now? Did you come to a conclusion? 

    May I ask you to reflect on what you feel may be the cause to the negative feelings you're experiencing? Has this been a lifelong problem or is it more temporary? 🙏🏻♥️

  22. Posted

    Apologies if I echo other recommendations buuuuuut you could try:

    Regular exercise

    YouTube summer day sounds (birds waterfall etc) with eyes such (using imagination to imagine yourself to a beautiful warm place) 

    Travelling to a hotter climate if possible

    Keep taking Vit d3

    Not tried it myself but the light therapy

    Going to a garden centre to the indoor house plant section as it's usually very green and warm (replicates summer vibes) 

    Feed the local wildlife (purpose)

    Give yourself a lovely cosy indoor space with lots of soft and warm vibes. Paired with a nice hot choc etc. 

    (P.s I am also struggling with this as I live in the northern part of the UK)b⛈️🌧️☔

     

    ☺️☀️